News & Topics in Our Community
Opportunity for Public Comment: U.S. Access Board Releases Voluntary Guidelines for Onboard Wheelchairs
August 20, 2019
Opportunity for public comment: advisory guidelines for onboard wheelchairs, used to transport someone between an aircraft seat and an aircraft restroom.
Public hearing September 12, comments due October 21.
U.S. Access Board Releases Voluntary Guidelines for Onboard Wheelchairs for Public Comment
The U.S. Access Board has released for public comment advisory guidelines for wheelchairs used on commercial passenger aircraft during flight. These onboard wheelchairs are provided by air carriers as a means of facilitating the transfer of passengers with disabilities to aircraft lavatories since personal wheelchairs cannot be used in the cabin. The Department of Transportation (DOT) has expressed its intention to supplement its regulations under the Air Carrier Access Act (ACAA) to include performance standards for onboard wheelchairs on covered aircraft. The Board is developing these non-binding guidelines as technical assistance to air carriers and manufacturers of onboard wheelchairs by providing an example of how to meet DOT's planned performance standards.
As indicated in a notice published in the Federal Register, the guidelines specify dimensions, features, and capabilities for onboard wheelchairs that will allow passengers with disabilities to be more safely and comfortably transported aboard airplanes in flight. In addition, the guidelines include criteria to allow the onboard wheelchair to fully enter the lavatory in a backward orientation and be positioned over a closed toilet, and for the lavatory door to be closed. This feature would afford those passengers who cannot independently transfer to the toilet to have privacy in performing non-toileting tasks related to personal hygiene or medical needs. The Board has posed a number of questions to the public about specific provisions in the guidelines but welcomes input on all portions of the document.
As part of a negotiated rulemaking to improve access for air travelers with disabilities, DOT has put forth plans to supplement its ACAA regulations and require onboard wheelchairs with enhanced functionality on aircraft with more than 125 passenger seats.
Related information, including instructions for submitting comments, is posted at www.regulations.gov (Docket ATBCB-2019-0002). Comments are due October 21, 2019. In addition, on September 12, 2019, the Board will hold a public hearing that will provide an opportunity to submit comments either in person or by phone. Further details will be posted on the Board's website at www.access-board.gov/onboard. Those who wish to provide testimony at the hearing should contact Rose Marie Bunales at (202) 272-0006 (voice) or email@example.com by September 5, 2019.
For further details on the guidelines or the public hearing, contact Wendy Marshall at (202) 272-0043 (voice) or firstname.lastname@example.org, or Mario Damiani at (202) 272-0050 (voice) or email@example.com.
Public Hearing on Advisory Guidelines for Aircraft Onboard Wheelchairs
September 12, 2019, 9:30 - 4:00 (ET)
Remote attendance options will be posted at: www.access-board.gov/onboard
Access Board Conference Center
1331 F Street, NW, Suite 800
Note: For the comfort of all participants and to promote a fragrance-free environment, attendees are requested not to use perfume, cologne, or other fragrances.
SURVEY ON BARRIERS TO RECEIVING SUPPORTS TO COMMUNICATE
August 19, 2019
- Are you a person with a developmental disability who needs support to communicate?
- Are you a family member of a person who is non-speaking, minimally speaking, or unreliably speaking?
- Are you a professional working with people with disabilities who need support to communicate?
- This email is for you!
SURVEY ON BARRIERS TO RECEIVING SUPPORTS TO COMMUNICATE
Disability Voices United and Disability Rights California are leading a project called the Communication Disabilities Access Network (CDAN). The project explores the various problems that people with developmental disabilities face when trying to access communication supports. We want to know the problems you are facing so that we can develop informational materials and advocacy efforts to break down the barriers.
For this survey, "communication supports" means all aspects of a communications system that helps a person with a disability communicate. This could include Augmentative and Alternative Communication (AAC) and assistive technologies (AT).
Communication supports could be equipment, such as a letterboard, iPad, smart phone, DynaVox, JAWS, and PECs. It also consists of services, such as sign language interpreters and communication partners. It can also include communication methods, such as gestures, facilitated communication, Rapid Prompting Method, sign language, braille, and others. This survey also covers the need for assessments, training, and ongoing supervision.
There are three versions of this survey:
1) For people with developmental disabilities who need communication supports
2) For family members of a person with a developmental disability who need communication supports , and
3) For professionals (direct care providers, agency service providers, speech therapists, educators, etc.) who serve people with disabilities who need communication supports
Click on the correct link below to find the survey.
CLICK HERE FOR SURVEY FOR PEOPLE WITH DEVELOPMENTAL DISABILITIES/ SELF-ADVOCATES
CLICK HERE FOR SURVEY FOR FAMILY MEMBERS
CLICK HERE FOR SURVEY FOR PROFESSIONALS
Feel free to forward this survey to others!
Disability Voices United is a statewide advocacy organization directed by and for individuals with developmental disabilities and family members.
We advocate for:
Choice and control over our lives,
Meaningful outcomes that matter to us, and
Systems that are equitable and accountable to us.
DONATE | JOIN
NDLA Organizers Forum on 8/20: Fighting Racism & White Supremacy
August 15, 2019
Organizers Forum: Fighting Racism & White Supremacy
Tuesday, August 20, 2019
1:00-2:00 p.m. Eastern; 12:00-1:00 Central; 11:00-12:00 Mountain; 10:00-11:00 Pacific
Video link: https://zoom.us/j/158367875
Call-in: 1-929-205-6099, Meeting ID 158 367 875#
Or find your local number: https://zoom.us/u/aedVwZm7zQ
As we hit 400 years since the beginning of slavery in the U.S., hundreds of Latinx immigrants are forced into camps, and the President himself encourages racism and violence, let's talk about how we in disability communities can take action. What work needs to be done within the disability rights movement, and how can we act in solidarity with immigrant rights groups and others? More conversations like this are happening in disability spaces and let's use this call as an opportunity to keep learning and growing.
We'll be on video! Click the Zoom link above and turn on your webcam, or you can just call in from your phone. Unfortunately we will not have the online conference line available as in prior months. Please test your webcam and speakers before the call.
Speakers to be announced.
Accommodations & CART:
- The call will have real-time captioning (CART) at: https://2020archive.1capapp.com/event/forum/. No username and password needed, when you log on at the time of the call.
- To ask questions via CART: Sign-in to the chat function on the right side of the transcript and type your question. One of the call facilitators will read questions posted there. You can also type questions through the Zoom video portal.
- Because we want to maximize the generously donated CART services, we will begin the call promptly at 1:00 p.m. and end the call promptly at 2:00 p.m. Eastern.
- Thank you to the National Disability Leadership Alliance for sponsoring the captioning of this call. Thank you to Senior and Disability Action for providing the video conference service.
- If you need additional accommodations to participate in the call, please let us know as soon as possible.
Mark your calendars! The Organizer's Forum has a call on the 3rd Tuesday of each month, 1:00-2:00 p.m. Eastern.
The Organizing Workgroup of the National Disability Leadership Alliance hosts these calls the third Tuesday of every month as a resource for disability organizers, in an effort toward building the organizing capacity of the disability community across the country. They generally follow the format of a Welcome followed by 2-3 experts in a given area speaking for a few minutes on their experiences, advice and challenges. The calls include a 20-30 minute question and answer period.
Please share widely!
Disability Leadership Needed on Governor's Taskforce Against Gun Violence
August 12, 2019
Last week, Governor Newsom announced that, in light of the mass shootings, he will expand an existing task force to focus more on gun violence, white supremacy, etc. He specifically mentioned it will include civil rights leaders.
California Foundation for Independent Living Centers (CFILC) is offering to provide letters of support for people with disabilities interested in applying. The details of this task force are still being determined but if you are interested and want support, please contact CFILC’s Disability Organizing Network here.
To inquire directly with the Governor’s Appointments Unit, you can just call 916-445-4541 and inquire about “the expanded task force that he announced at the media event on August 5.” There may be no need for a state application form and just a letter and resume may be sufficient. Also, stay up-to-date by regularly checking the Governor’s website (gov.ca.gov).
Let our mourning turn into action.
August 12, 2019
YO! Disabled & Proud and the Disability Organizing Network express our deepest sympathy and solidarity with those in mourning from the most recent mass shootings.
While this is a response to the lives lost and forever altered during the recent mass shootings in Gilroy, CA, El Paso, TX, and Dayton,OH, we also know that there are thousands of people, disproportionately Black & Brown people with disabilities, who are continuously murdered and traumatized by gun violence every year.
Too often gun violence and, specifically, mass shootings, are blamed on mental illness, especially when the individual behind the trigger is a white male. This is not a mental health/illness issue, but an issue rooted in increased gun access and xenophobia, racism and ableism.
There is great strength and power within the voices of our community- from youth to older adults. So, no matter what your political views may be, let’s hold ourselves and our communities accountable to shaping public understanding of Disability, including mental health/illness and the issues impacting us.
TO DISPEL THE MYTHS AND SHAPE PUBLIC UNDERSTANDING:
Mental illness/mental health disabilities should not be used as excuses or reasons for increased gun violence. In fact, people with disabilities, including those with mental health disabilities, are more likely to be the victims and survivors of gun violence, rather than being the perpetrators.
Here are important articles to read and share in hopes that they will help shape your conversations regarding gun violence, disability, and white supremacy.
- "Make Real Change On Gun Violence: Stop Scapegoating People With Mental Health Disabilities" from Autistic Self Advocacy Network
- “Mass Shootings and Mental Illness”, American Psychiatric Association Publishing
- VIDEO: People With Mental Health Disabilities Shut Down Dangerous Ideas About Gun Violence from Rooted in Rights
- “Ableism Is the Go-To Disguise for White Supremacy. Too Many People Are Falling for It” by Imani Babarin
Special thanks to Alice Wong for making sure that we all have the resources and knowledge we need to shape public awareness and advance justice for our communities. Learn more about Alice Wong’s Disability Visibility Project and ways to support her.
Make CA power shut-offs safe for people with disabilities!
August 8, 2019
Make California power shut-offs safe for people with disabilities!
Deadline: August 14
Let’s make sure that power shutoffs are safe for us!
The California Senate Subcommittee on Gas, Electric, and Transportation Safety will be hosting an informational hearing on public safety power shutoffs (PSPS) on Wednesday, August 14, 2019, in State Capitol Room 3191 at 10am.
As part of the hearing process, the Subcommittee will accept written public comments. Let's educate the legislature.
How to make comments:
Your comments must be received by the date of the hearing, August 14. Input should be addressed to the Chair of the Subcommittee—Senator Jerry Hill, or Chair of the Standing Committee—Senator Ben Hueso.
Input can be mailed to Senator Hill’s office at the State Capitol, Room 5035, or the Senate Energy’s Office at the State Capitol, Room 4035.
OR it can be e-mailed to Senator Hill’s office at mailto:Senator.firstname.lastname@example.org.
Please let your voice be heard!
The power shutoffs endanger people who rely on power wheelchairs, elevators to exit and enter their buildings, and medical equipment such as ventilators, dialysis, oxygen, and filters. Some people need power 24/7 just to breathe.The legislature must understand these issues and must actively address the concerns of the Disability and Aging communities across California.
Information Sharing: PG&E Wildfire Safety Informational Webinar
July 13, 2019
PG&E Wildfire Safety Informational Webinar
Monday, July 22, 2019
6 to 7:30 p.m.
Access by clicking this link*: https://engage.vevent.com/rt/pacificgasandelectriccompany~071719
PG&E is conducting a series of regional in-person open houses across our service area. A schedule of open house and webinar events is available at pge.com/wildfiresafety. Please feel free to reach out to PG&E directly if you have any questions or need additional information. Thank you for your ongoing coordination and support around our wildfire safety efforts.
Topics will include:
Expansion of the Public Safety Power Shutoff program
Accelerated safety inspections of electric infrastructure
Enhanced vegetation management around power lines
Hardening the electric system for the future by replacing equipment and installing covered power lines and stronger and more resilient poles
Please note that for optimal viewing, it is best not to use VPN, but instead to connect directly to the Internet.
Please stop your pop-up blockers in order to view the content in its entirety.
This event is being streamed. It is recommended that you listen via your computer speakers. An additional option for audio listening in to dial in:
Toll-Free Attendee Dial In: 855-247-4312
Let's Build Our Power - #DisabilityVoteCA
July 8, 2019
Are you an independent living center, disability organization, service provider, community group, activist, or artist collective?
The Disability Organizing Network joins national REV UP to celebrate the nationwide effort to increase and promote the collective power of the Disability Vote!
We invite YOU to join us!
The Disability voting bloc includes more than just eligible voters who have disabilities; it also includes our family members, caregivers, and allies!
We are the #DisabilityVoteCA!
Join us to amplify your work and the work of local organizations, groups, and leaders that increase voter accessibility, registration and participation! This is just the beginning of a larger community organizing campaign that will with propel us for what is ahead: the 2020 Census and upcoming elections.
Learn about ways to get involved
Sign up as a partner
Have questions or want to learn more? Contact Allie Cannington at email@example.com, voice/text (916) 606 5300
*National Disability Voter Registration Week is an annual effort coordinated by the REV UP Campaign; it is a nonpartisan initiative under American Association of People with Disabilities (AAPD). It coordinates national, state, and local disability organizations to increase the political participation of the disability community while also engaging candidates and the media on disability issues. REV UP stands for Register! Educate! Vote! Use your Power!*
Celebrate National Disability Voter Registration Week 2019 with California's Disability Organizing Network
June 26, 2019
Disability Organizing Network joins REVUP in celebrating National Disability Voter Registration Week by launching a non-partisan, statewide, community organizing effort to highlight organizations and groups that increase voter accessibility, registration, and engagement. We are using the hashtag #DisabilityVoteCA!
What Is The Goal?
To organize, highlight, and amplify the collective power of Californians with Disabilities and our vote while joining the national efforts of REVUP and National Disability Voter Registration Week to ultimately increase voter turnout.
When Is National Disability Voter Registration Week? July 15th-19th, 2019
Where Are We Celebrating? Online and in our communities. Partners can join our social media campaign #DisabilityVoteCA as well as hosting local events, registration drives, community meetings and more.
Who Can Participate? Everyone. It’s not just for independent Living Centers, disability organizations, service providers, community groups, activist or/and artist collectives. We invite anyone and everyone who wants to increase voter turnout to participate!
Amplify your advocacy! Learn from and connect with other advocates across the state. This will help pave the way for what is ahead: the 2020 Census and upcoming elections. Sign Up As A Partner.
Ways To Participate As A Partner:
- SOCIAL MEDIA: Spotlight local leaders (Individuals and Organizations)
- Be sure to use the hashtag #DisabilityVoteCA
- IN PERSON: Host a local meeting, event, training, or registration drive.
- Take photos and capture stories! Share via on social media with #DisabilityVoteCA or email the photos and stories to the Disability Organizing Network: <firstname.lastname@example.org>
What the Disability Organizing Network Provides:
- An easy guide that includes social media spotlight ideas, sample activities, and resources.
- Accessible social media materials: graphics and sample language
- An exclusive technical support session and one-on-one support available from July 8th-12th, 2019.
- Increased visibility for your organization and opportunity to build new partnerships.
Sign Up As A Partner: https://www.surveymonkey.com/r/2019disabilityvoteca
- July 5th, 2019: Deadline to complete the Disability Organizing Network Partner Join Form
- July 9th from 1-2PM: Partner Support Session (The session is free, but only for those who register as partner organizations.)
- July 8th-12th, 2019: One-on-one support available
- July 15th-19th, 2019: National Voter Registration Week #DisabilityVoteCA
About REVUP - REVUP stands for Register! Educate! Vote! Use your Power! launched by the American Association of People with Disabilities (AAPD) in 2016. It is a nonpartisan initiative that coordinates with national, state, and local disability organizations to increase the political participation of the disability community while also engaging candidates and the media on disability issues. The Campaign focuses on voter registration, education, access, and engagement.
Click here to learn more about the Disability Organizing Network.
Gratitude and credit to the first official use of #DisabilityVoteCA during the 2018 launch of www.disabilityvoteca.org from The Arc of California, California State Council on Developmental Disabilities, and Disability Rights California.
For more information and/or any questions, contact Allie Cannington (916) 606-5300 or email email@example.com.
#DisabilityVoteCA Social Media Guide (Docx)
1) Change your social media profile photo to include #DisabilityVoteCA: Twitter | Facebook.
10 More Days to Speak Up for Equal Pay for People w/ Disabilities
June 11, 2019
Disability Organizers, Advocates and Allies,
we have until June 21st to speak up for equal pay!
For the next two weeks, we have an opportunity to fight back against subminimum wage. The Department of Labor is seeking public comments on section 14(c), the outdated system companies and providers use to segregate disabled workers while paying us less than minimum wage—sometimes less than a dollar per hour. The sheltered workshop industry will be flooding the comments, trying to drown out the voices of people with disabilities who want real work for real pay. Help us make sure our community is heard by submitting a comment before June 21st. (the date was extended)
Anyone can submit a comment, including employers, disabled people, and our family members and friends. Never written a comment before? Here are some suggestions to get you started!
- People with disabilities can write about how being paid a subminimum wage does or would impact your life. How does/would it impact your living situation, your finances, and how other people treat you? Why is it important to you go work in an integrated setting, instead of in a sheltered workshop or other segregated setting?
- Employers can share how paying people with disabilities fair wages improved the way your businesses run. Talk about why it is important to you that all of your employees are paid a fair wage and work together in an integrated setting.
- Friends and family can talk about how important it is to see disabled members of their communities working for an equal wage in an integrated setting. You can talk about how it makes you feel to see people in your community mistreated.
Equal pay is a civil right, and decisions about our rights shouldn’t be made without us. In the next two weeks, the Department of Labor needs to be hearing from people with disabilities and our allies every day. It’s time to leave subminimum wage behind, so please take a moment to write a comment, spread the word, and take a stand for equal pay!
Find out more great resources on how you can take action now at: https://autisticadvocacy.org/workwithus/
#WorkWithUs #DisabilityOrganizing #DOnetwork
- Action Alert adopted from Autistic Self Advocacy Network -
Social Media Training at Silence = Violence Network Meeting (6/14)
June 11, 2019
Join the Silence = Violence Coalition for its quarterly coalition meeting and training.
This Friday features a Social Media training to gear up for World Elder Abuse Awareness Day (WEAAD) on June 15th.
PARTICIPATE IN PERSON
WHERE: California Foundation for Independent Living Centers, 1000 G Street, Suite 100, Sacramento, CA 95814
WHEN: Friday, June 14, 2019 from 1:00 PM - 3:00 PM (Social Media presentation begins at 1:30 PM)
NOTE: Please bring a smartphone, laptop or tablet to participate.
RSVP:To reserve a spot, please email: firstname.lastname@example.org
The Zoom platform will have live captioning.
Join Zoom Meeting by Web: https://zoom.us/j/379222112
OR by Phone: (408) 638 0968
Meeting ID: 379 222 112
About the Silence = Violence Network
The Silence = Violence Network is comprised of representatives from agencies serving people with disabilities and seniors with statewide outreach capabilities and seeks to increase public awareness and decrease the number of people with disabilities and elders who experience abuse. Network members engage their collective strength to tackle the victimization of elders and people with disabilities by sharing knowledge and creating realistic strategies and campaigns to prevent and reduce the number of abuse incidents.
Follow S=V on Facebook, Twitter & Instagram
Public Input Needed: Phase II Underway
June 10, 2019
CALLING CALIFORNIA DISABILITY ORGANIZERS, ADVOCATES & ALLIES:
EVV Phase II is underway and we need to continue to inform this process!
The second public stakeholder meeting on the implementation of what is referred to as "EVV (Electronic Visit Verification) Phase II, impacting agencies who provide Medicaid funded home care type services and supports - including regional center funded services including Supported Living, and In-Home Respite, and certain services under the new Self Determination Program, is scheduled for:
WHEN: MONDAY June 17, 2019
TIME: 1:00 PM - 3:00 PM
WHO: DEPARTMENT OF HEALTH CARE SERVICES (with Department of Social Services, Department of Developmental Services and California Department of Aging)
Attend in person:
Department of Health Care Services (Annex building)
1700 K Street, First Floor Conference Room
Sacramento, CA 95811
Attend via phone:
CONFERENCE CALL LINE: 800-593-0582
CONFERENCE CALL PASSCODE: 6023673
TELEVISED/STREAMED LIVE: No
AGENDA RELEASED?: Not yet - will be posted likely the day before the meeting on the EVV website
PUBLIC COMMENTS TAKEN?: Yes
The following is listed on the Department of Health Care Services EVV Phase II webpage: "For individuals with disabilities, the Department [of Health Care Services] will provide assistive devices such as sign-language interpretation, real-time captioning, note takers, reading or writing assistance, and conversion of training or meeting materials into Braille, large print, audiocassette, or computer disk. To request suchservices or copies in an alternate format, please write:
1515 K Street, Suite 400
Sacramento, CA 95899
Find out more on the EVV PHASE II WEBPAGE (on Department of Health Care Services website): https://www.dhcs.ca.gov/provgovpart/Pages/EVVMeetings.aspx
IMPORTANT BACKGROUND INFORMATION:
HOW IS CALIFORNIA IMPLEMENTING EVV:
- California is implementating "EVV" in two phases, though those phases would be implementing concurrently (at the same time):
- PHASE I is focused on the IHSS and Waiver Personal Care Services (WPCS) programs that currently use the Case Management Payrolling & Information Systems (CMIPS) and Electronic Timesheet and Telephonic Timesheet Systems. California plans to implement Phase I EVV over the course of the next two years or so and will seek a good faith exemption request to delay full implementation until January 1, 2021. The is planning on rolling out EVV Phase I first in Los Angeles County (over a period of several months in different parts of that county), beginning July 2019, and beginning in January 2020, rolling implementation in a series of counties as the state did with the then voluntary IHSS Electronic Time Sheet system several years ago.
- PHASE II is focused on identifying either an existing system(s) or a new system to implement EVV for non-CMIPS and agency personal care services, and self-directed and agency home health services. This includes regional center funded home care services that fall under the requirement of "EVV" including supported living services (SLS) and in-home respite services. The 2019-2020 State Budget - that will have a final vote later this week - includes significant one-time funding and some basic implementation steps for the State to move forward, working with stakeholders. The first EVV Phase II public stakeholder meeting was held on October 2, 2018.
- The following services funded under the following Medicaid (Medi-Cal) waivers in Calfornia will be required to fully comply with implementation of EVV Phase II:
- DEPARTMENT OF DEVELOPMENTAL SERVICES (DDS)
- DDS 1915(c) Waiver, Self-Directed and Agency Model
- DDS 1915(i) State Plan, Self-Directed and Agency Model DDS 1915(c) Waiver Self-Determination Program, Self-Directed, and Agency Model
- DEPARTMENT OF HEALTH CARE SERVICES (DHCS)
- DHCS Waiver Personal Care Services, Agency Model
- DHCS Home and Community-Based Alternative 1915(c) Waiver
- DHCS Home Health Care Services
- CALIFORNIA DEPARTMENT OF AGING (CDA)
- CDA Multipurpose Senior Services Program for 1915(c) and 1115 Waiver
- CALIFORNIA DEPARTMENT OF PUBLIC HEALTH (CDPH)
- CDPH 1915(c) AIDS Medi-Cal Waiver
- DEPARTMENT OF DEVELOPMENTAL SERVICES (DDS)
CALIFORNIA'S GUIDING PRINCIPLES IN IMPLEMENTING EVV
The following, after working with stakeholders over numerous meetings and over the course of several months, are the guiding principles in how California will implement EVV (Electronic Visit Verification) for both Phase I and Phase II. These principles were included in the main state budget bill for 2018-2019 passed last June by the Legislature and signed into law by Governor Brown. These principles are supposed to be part of one of the 2019-2020 State budget trailer bills that will eventually go to the governor:
- California’s approach to EVV will be consistent with federal law.
- EVV will be developed through a collaborative stakeholder process
- EVV will be developed in a manner that respects recipients and providers, does not alter their Olmstead protections and is minimally burdensome.
- EVV will not change the number of service hours, nor how or where services are delivered
- Use of geo-tracking or global positioning system capabilities (GPS) will not be required
- Existing electronic and telephonic timesheet systems will be leveraged for EVV
- Providers, recipients and other stakeholders will be trained on the use of the EVV system
Complete & Share TODAY: CA Disaster Prep Survey for Disability & Aging Communities
June 6, 2019
Attention California advocates & community members:
As we support disaster preparedness and response across California for aging and disabilities communities, we know that there is limited data that illustrates our needs in preparation and during disasters. Please help us gather data that is for and by us – the disability and aging communities! The data collected will be ESSENTIAL to all areas of advocacy related to disaster preparedness and response for our community.
Please complete this survey and share WIDELY with your community via listservs, social media, in person etc: Access & Functional Needs Disaster Preparedness Survey! This survey is intended for Californians with disabilities of all ages.
If you need to complete the survey on paper, please contact Allie Cannington via email: email@example.com.
* * * The survey closes this Friday 6/7 by 5PM! * * *
Please share our message via social media, too. Links to posts: Facebook, Twitter, Instagram, LinkedIn
ACTION ALERT: Disaster Preparedness & Our Community's Needs
May 29, 2019
We, people with disabilities, are disproportionately left behind and have the highest rates of injury and death during and after disasters!
The California Public Utilities Commission (CPUC) approved utility de-energization programs, which are when an electric utility turns off the electricity to its utility grids in areas where there is low humidity, high temperature, and high wind. Utility de-energization events can be beneficial, because they can reduce the possibility of utility-caused wildfires. However, people with disabilities who depend on consistent electricity to charge mobility equipment or run life-supporting medical equipment, de-energization can be life threatening.
We, people with disabilities, know our needs and must be key partners in creating solutions so that all Californians can have equal protections at the risk of and during a disaster. So what can you, your peers and allies do?
- If you are a person with disabilities or a senior, please take a few minutes and complete this Access & Functional Needs Survey so that there can be more data to support this advocacy.
- Share your feedback, comments and ideas for solutions at This Thursday’s California Public Utilities Commission (CPUC) Meeting:
To listen by phone, dial 1-800-857-1917 and enter passcode 92105 or
access our website at http://www.cpuc.ca.gov
Provide public comment by phone, email, or
U.S. mail via our Public Advisor’s office:
Address: CPUC Public Advisor's Office,
505 Van Ness Ave.,
San Francisco, CA 94102
For your ADA reasonable accommodation requests to be able to testify at the public hearing on utility de-energization (shut-off), please directly contact:
Director, News & Outreach Office
California Public Utilities Commission
Office: (415) 703-2160
Action: Your Voice & Opinion Matters
May 8, 2019
The State Plan for Independent Living (SPIL) is a three-year plan based on community input and feedback. As a disability community member you are invited to share what you believe should be prioritized or continued to be prioritized in the SPIL.
The SPIL currently provides funding that allows Independent Living Centers across California to assist people with disabilities of all ages in transitioning out of institutions. Institutions can be nursing homes, skilled nursing facilities, hospitals, etc. The SPIL also provide funding for the Disability Organizing Network, which allow us to keep you informed, engaged and aware of opportunities that you may not otherwise hear about. The Disability Organizing Network also provides training, technical assistance and resources on all thing’s community organizing. These are two examples of what the SPIL supports. If you’d like to see these priorities continued or if you have other ideas on how the SPIL can support people with disabilities please participate in the SPIL meeting in-person or by phone.
Feel free to contact the State Independent Living Council office if you’d like to learn more, 1(866)866-7452.
Thursday, May 9, 2019
10:45 AM – 12PM
Public Hearing Regarding
State Plan for Independent Living (SPIL)
Attend in person:
Hilton Sacramento Arden West
2200 Harvard Street
Sacramento, CA 95815
Or Call In:
Public Teleconference Line: 1-866-718-9441
Participant Passcode: 4147933
Check out more info about the SILC & further details about tomorrow’s meeting, visit https://www.calsilc.ca.gov
Mark Your Calendar: Disability Action Coalition Policy Trainings
May 2, 2019
We are three weeks away from the first-ever Disability & Aging Capitol Action Day, co-hosted by the Disability Action Coalition (DAC) and the California Alliance for Retired Americans (CARA). This partnership with CARA has afforded us with rich opportunities to learn and strengthen our strategies of collaboration and advocacy.
Join these sessions to learn about the plans and logistics for our first-ever Disability & Aging Capitol Action Day on May 23rd in Sacramento:
Webinar I: Disability Action Coalition Policy Training
Take a deep dive into the Disability Action Coalition (DAC)'s Legislative Agenda.
When: May 13, 2019 - 2:00 PM Pacific Time (US and Canada)
To access the webinar, please visit: https://zoom.us/j/664460682
- Or iPhone one-tap: +14086380968,,664460682#
- Or Telephone: (408) 638 0968
Webinar ID: 664 460 682
Webinar II: DAC / CARA Joint Policy Training
Get details on the two bills that we will focus on during our legislative visits: SB 512(Pan) and AB 1434 (Kalra).
When: May 20, 2019 2:00 PM Pacific Time (US and Canada)
To access the webinar, please visit: https://zoom.us/j/384972947
- Or iPhone one-tap: +14086380968,,384972947#
- Or Telephone: (408) 638 0968 or +1 646 876 9923
Webinar ID: 384 972 947
DOnetwork Twitter Chat: Disability Advocacy & Our Public Officials
May 2, 2019
Join us to share and learn best practices regarding meetings with public officials for Disability Advocacy!
In partnership the Disability Organizing DOnetwork, California Disability Action Coalition - DAC, and the Disability Visibility Podcast Project® will host a Twitter chat on disability advocacy with public officials on Tuesday, May 7, 2019, 3-4 pm Pacific.
While all participants are welcome, we will focus on disability advocacy in California. We want to hear about your advocacy efforts and the tactics you use with your public officials at the local, state, and federal level.
How to participate and chat questions: https://disabilityvisibilityproject.com/2019/04/29/5-7-donetwork-twitter-chat-disability-advocacy-our-public-officials
CalFresh for Seniors and People with Disabilities
May 2, 2019
Beginning June 1, 2019, SSI/SSP recipients will be eligible for CalFresh (SSI/SSP benefits will NOT decrease as a result).
CalFresh rules include opportunities to maximize benefits and simplify the application process for people in specific situations. Below you’ll find an overview of CalFresh rules that apply to seniors and people with disabilities (including newly eligible SSI/SSP recipients) with specific examples that represent common situations.
SSI/SSP recipients currently living in households where other household members are receiving CalFresh will automatically be added as an additional recipient at the next recertification or semiannual report. If adding the SSI/SSP recipient would result in a reduction or total loss of CalFresh benefits (due to the increase in total household income from the SSI/SSP benefits), they will receive Supplemental Nutrition Benefits (SNB) or Transitional Nutrition Benefits (TNB). For more information about SNB and TNB, check the policy guidance at www.cdss.ca.gov/CalFreshSSI.
Webinar: Census 2020: Inclusion of People with Disabilities 4/30
April 25, 2019
Our Disability community must be counted in the Census 2020.
Join us TUESDAY 4/30 "Webinar: Census 2020: Inclusion of People with Disabilities"
1. To educate Census 2020 key stakeholders about the importance of outreach to people with disabilities and how to encourage their participation in Census 2020
2. To engage with disability advocates and leaders so that the CA Census outreach efforts are inclusive of people with disabilities
3. To inform the disability community about the importance of Census 2020
Live captioning will be available. Requests for accommodations for individuals with disabilities (sign-language interpreter, assistive listening device, Braille, or any other accommodation needed by an individual) should be made to the CA Census Office no later than five (5) working days prior to the day of the webinar.
Give $20 to support Disability Advocates in honor of Olmstead's 20 years
April 24, 2019
Twenty years ago, the landmark US Supreme Court Decision of Olmstead v. L.C., declared that unjustified segregation of people with disabilities is against the Americans with Disabilities Act (ADA). With the fierce leadership of Lois Curtis & Elaine Wilson, Olmstead paved the way for people with disabilities to have greater access to community integration, independence, and community living.
Help the Disability Action Coalition carry out the legacy of Olmstead by supporting advocates with disabilities to travel and mobilize for this year’s Disability & Aging Capitol Action Day.
FOR THE 20TH ANNIVERSARY OF OLMSTEAD & Share widely!
The Teresa Favuzzi Mobilization Fund also honors the legacy of Teresa Favuzzi, an Olmstead advocate and one of the founders of Disability Action Coalition and Disability Capitol Action Day. The fund covers travel costs for people with disabilities to participate, mobilize and show our collective power at our State Capitol.
For more information about this year’s program and events please visit the Disability Action Coalition website at www.DisabilityActionCoalition.org.
Test Uber's New Wheelchair Accessible Vehicles in Select Cities and Share Your Experiences with NCIL
April 23, 2019
Uber has been working with MV Transportation to expand access to wheelchair accessible vehicles (WAVs). These are now available in: New York City; Boston; Philadelphia; Washington, DC; Chicago; San Francisco; and Los Angeles. They have also developed a feedback form for riders’ experiences, which can be found at: t.uber.com/wavfeedback.
We would like to encourage those of you who are wheelchair users who are interested to try this service and send feedback us at firstname.lastname@example.org. We are very interested in hearing about anything you’d like to share with us regarding your experiences. Please note that the information shared with us may be shared with Uber, but we will not provide any identifying information.
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CalFresh expanding for seniors and people with disabilities receiving SSI
April 16, 2019
Due in part to advocacy from groups like Californians for SSI, the 2018-2019 state budget included a policy change allowing California seniors and people with disabilities who receive SSI to be eligible for CalFresh (SNAP) benefits starting June 1, 2019.
Access to federal SNAP nutrition assistance will increase food security for California’s low-income SSI seniors and people with disabilities, leading to fewer people being forced to choose between basics like food and medicine, and giving people more flexibility to direct money toward other needs such as finding and being able to afford housing. The expansion will be particularly important for seniors age 60 or older, who represent more than half of the over 1.2 million low-income Californians who receive SSI to help meet their basic needs.
Aging services providers can learn more details about this important and historic change in a fact sheet from Justice in Aging. The five-page fact sheet helps providers understand the details of the change in order to better support their clients. The fact sheet also includes information on CalFresh rules that will be particularly relevant for enrolling SSI seniors and people with disabilities this summer and beyond.
Read the fact sheet.
More info on CalFresh expansion in English and Spanish.
Are you ready? May 23rd - Disability & Aging Capitol Action Day
April 15, 2019
People with disabilities
People with chronic illness
People with mental health conditions
People with pre-existing conditions
Older adults and seniors
We are everywhere.
In your family, in your school, in your workplace, in your local corner store.
Yet, too often, our needs, our dreams and our lives are not given the dignity that we all are worthy of.
Let 2019 be the year when all Californians have a stake in advancing the civil rights, independence and freedom for people with disabilities and older adults.
Join Disability Action Coalition and the California Alliance for Retired Americans on Thursday, May 23, 2019 from 10am-3pm for the first-ever Disability & Aging Capitol Action Day in Downtown Sacramento. The day includes a resource fair, educational rally, unity march and legislative meetings.
Grounded in cross-generational solidarity, we are mobilizing to the capitol, exercising our power, and informing California’s elected officials about what matters most.
Click here to Volunteer
Click here to Sponsor
Register for the Resource Fair
Support the Teresa Favuzzi Mobilization Fund
YOUR STORY, YOUR VOICE: California Needs More Options
April 2, 2019
Are you or someone you know living with disabilities?
Are you or someone you know living with chronic illnesses?
Are you or someone you know living with a pre-existing condition?
If so, you most likely access or struggle to afford and access
LONG TERM SUPPORTS & SERVICES (LTSS) this means:
- Access to daily living support, such as bathing, dressing, eating, grocery shopping, medications, wound care, paying bills, transportation, etc.
- The ability to modify your home to be more physically accessible
- Having support to navigate what services exist
- Access to assistive technology, such as durable medical equipment, a cpap machine, text-to-voice technology, and more.
BUT, accessing what you need can be a challenge, especially:
- If you do not qualify for Medi-Cal and are unable to afford out of pocket services.
- If you had to spend all of your money and assets to qualify for Medi-Cal
- If you coordinate paid or unpaid caregivers and struggle to hire because of the care crisis
Do you resonate with any of these situations?
Do you believe that there must be more options available for long term supports and services (LTSS)?
We can only help to pave the way for more LTSS options through listening and honoring our stories - the stories of people with disabilities, of all ages!
Join an effort led by older adults, people with disabilities and homecare workers that seeks to create more options for Californians to live with dignity and access in their homes and communities. The California Aging and Disability Alliance is working to find a sustainable funding source to create a new program to help Californians pay for long-term supports and services (LTSS)/Long-term Care (LTC) as well as create hundreds of great homecare jobs. This program is being designed to support those seniors and people with disabilities who fall outside of IHSS, Regional Center and other public LTSS programs, and struggle to afford the supports they need to remain in their homes.
If you have a story to share and want to get involved in this work, we’d love to hear from you! Please email email@example.com or text/voice-call at (916) 606 5300.
The Right Straws Provide Access for People with Disabilities and Reduce Environmental Waste
February 11, 2019
(SACRAMENTO, CALIF.) – With support from Monterey Bay Aquarium and Central Coast Center for Independent Living, The California Foundation for Independent Living Centers (CFILC)’s program, the Disability Organizing (DO) Network conducted the nation’s first study on the Disability community’s experiences with alternative straws, especially non-plastic straws.
Local advocates conducted user experience tests across the state and discovered that people with disabilities who need straws for eating and/or drinking have nuanced and diverse needs.
The study found that best alternatives for people with disabilities are (1) bendable, compostable plastic straws and (2) BPA-free bendable straws– both types need to be at least 8.25 inches long.
“Having access to straws (historically plastic straws) allows people with disabilities can access independence, community integration and public life,” said Allie Cannington, Statewide Community Organizer at CFILC.
Although people with disabilities seek straws that are flexible, lightweight, durable for re-use and different temperatures, they want to find ways to reduce waste and conserve the environment.
“We’re grateful for the Disability community’s commitment to protecting our ocean and marine life from plastic pollution—in ways that work for them,” said Barbara Meister, public affairs director for the Monterey Bay Aquarium. “This report, and its findings, illustrate that all of us have a role to play in ocean conservation, and in ensuring access for all people. Through open dialogue and collaboration, we can advance both goals together.”
“We are stronger together,” said Cannington. Californians do not have to choose between providing access to people with disabilities and reducing harm to the environment.”
Find more details on the Statewide Alternative Straw Research and Report and tips on Bridging Disability Access & Environmental Conservation are available at the Disability Organizing website: www.DOnetwork.org
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About the California Foundation for Independent Living Centers (CFILC)
The California Foundation for Independent Living Centers (CFILC) registered 501(c)(3) non-profit Corporation that increases access and equal opportunity for people with disabilities by building the capacity of Independent Living Centers throughout California. To learn more, please visit: cfilc.org
About the Disability Organizing (DO) Network
The Disability Organizing (DO) Network mobilizes California’s Disability community and allies to change systems for greater access, independence and equity for people with disabilities locally, statewide and nationally. The DOnetwork advances this work through community organizing, advocacy, education, leadership development and coalition building. The DOnetwork is a project of the California Foundation for Independent Living Centers, funded by the Department of rehabilitation and the State Independent Living Council’s State Plan for Independent Living.
To learn more, please visit: www.DOnetwork.org
FOR IMMEDIATE RELEASE, February 11, 2019
Contact: Kyla Aquino Irving, (916) 325-1690 Ext. 304